The New SSS Blog

Posts

D + 28: Death Death Death aka Kappa Light Chains Take a Dive

Tuesday June 2, 2026 · 1 min read

Excellent news today: Yesterday, unbeknownst to me, one of the blood tests done was measurement of my Kappa light chain proteins, which is the primary marker used to measure the amount of myeloma cancer cells I have in my bone…

D + 27: Back Home in a Week

Monday June 1, 2026 · 1 min read

In the home stretch now. If all goes well -- and I have no reason to think that it won't -- we'll be back in our own home in Kensington on Friday. Only two more appointments left at Stanford: labs…

D + 23: Slowly Better

Thursday May 28, 2026 · 1 min read

It's 22 days since I received the KLN-1010 infusion, 4 days after getting out of this hospital after being hit the by side effects described here. The good news is that each day I feel a little better, a little…

D + 19: The Cancer Killing Begins

Monday May 25, 2026 · 2 min read

I'm out of the hospital after getting an answer to one of my pending questions: how long would it take the novel KLN-1010 product to turn my normal T-cells into cancer-killing CAR-T cells? The answer: About fourteen days. That was…

I Keep Rolling On

Monday May 18, 2026 · 2 min read

It's now D+12 and I continue to do great. No side-effect symptoms at all. We had an appointment at Stanford on Saturday for labs and vitals. Everything was normal except my sodium, so now I'm happily putting extra salt on…

Who Benefits from the War?

Saturday May 16, 2026 · 3 min read

Edited Sunday, May 17, 2026 This graphic appeared in today's New York Times, as part of an article about who benefits from the Strait of Hormuz closure and who doesn't. That big line next to "United States" -- around 50…

Tomorrow It's a Wrap!

Wednesday May 13, 2026 · 2 min read

I've been cleared to leave the hospital tomorrow. I'm still doing great, having no side effects from the treatment. Those may arrive in the next week or so as the number of modified CAR-T cells in my bloodstream increases. If…

Day + 5 Update: Nothing to Report but Boredom

Monday May 11, 2026 · 1 min read

I continue to have no side effects at all from my treatment. It's quite amazing. The worst thing I'm facing is a bout of cabin fever from having to stay on the ward 24/7. Out the window I can see…

Feeling Bad is ... Good

Friday May 8, 2026 · 2 min read

For the first time, today I felt crummy. Not horribly bad, just run down. Operating at 80%. But that's a good sign. It's a sign that the infusion is doing its work, running into T-cells in my blood stream and…

D+1 and Things are Good

Thursday May 7, 2026 · 2 min read

It's the day after I received the infusion of the KLN-1010 Phase 1 trial product. So far everything is going along as well as it could. I slept well last night (the Benedryl drowsiness won out over the dexamethasone buzz),…

Ready to Roll

Monday May 4, 2026 · 2 min read

I'm finally starting the trial. To get updates go to my existing site, click on a post, and subscribe to the site. Any new post will get sent to you automatically. Or check out that site or my new site…

Trial Confirmed, Today is D-6

Thursday April 30, 2026 · 1 min read

I got a call from Stanford yesterday confirming (finally) that I'm eligible for the Phase 1 trial. I always thought that I would be, but it wasn't a sure thing until the trial sponsor gave final approval. I'll be going…

I'm a Guinea Pig

Saturday April 18, 2026 · 2 min read

Early this year, the blood cancer I have had since 2018, which had been under control, returned. The cancer (called multiple myeloma) causes the bone marrow to over-produce cancerous plasma cells, which cause bone pain and damage, kidney damage, fatigue,…